Day 28 – ain't nobody got time for that

Got a call from one of Julianne’s docs today. She has to have a re-do of a test she had done last time we were there. The results were a little off, and we need to double check it to put to bed any concerns. It will be another new speciality area for us, but I’m praying that they are able to clear her of any potential future issues.

And yeah, I’m being pretty vague. When it comes to things of a medical nature, I’m not into speculating about what could be. Ain’t nobody got time for that. Or as our school nurse likes to remind me, “don’t go borrowing tomorrow’s troubles”. Or, as the Bible likes to say, “Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. – Matthew 3:34”

WORD. (literally)

Source HERE

I’m sure I’ll share more later, but for now, that’s it. It’s funny how EB likes to throw curveballs at us, right? I mean, not funny “haha” obviously, but like, funny “hey, I could have lived without that”, right?

I do have something really fun to share tomorrow, so hurrah!

Day 27 – Meme Monday!

It’s here again! One of my fav days of the blogging week. MEME MONDAY! Today you get TWO memes because I’m feeling them both pretty strongly. ๐Ÿ˜‚

Found HERE

This meme is truth in our house. I LOVE my children, but conversations are not my thing until after Cup #1 is down the hatch.

And, one of my all time favs…

Found HERE

Happy Monday, and may the caffeine be with you!

Day 26 – bring on the meds

Yesterday was I.C.K.Y.

Like, really icky.

Her legs are being overgrown with ick.

Changed up what we used to try to curb the growth of the ick, but along with ick comes added pain, so today we dosed with extra pain medication before the process started.

Cut some more bandages for coming days, placed an order for some wound care items we will run out of before our next order is due, and cannot WAIT for that bill to come in. Hahaha… just kidding. I totally can wait. Start of the year means starting over on meeting deductible, and ours is not super fun to meet. At least it’s predictable and we can plan for it. We’ve NEVER been without anything we’ve needed, and that’s just Jesus putting into action what He said He’d do for us at the start of our EB journey, which is to provide for our needs. Not wants, necessarily. Good grief I’d love a week away with the hubs, but that’s a want, not a need. We clocking along just fine without it. But it would be nice. ๐Ÿ˜‰

Photo byย frank mckennaย onย Unsplash

Anyhow… got off track.

And now I forgot what else I was going to say.

Lucky you. ๐Ÿ™‚